Welcome to the CIHHV-6 website!

This website aims to bring patients, clinicians and researchers together to learn more about chromosomally integrated human herpesvirus 6 (ciHHV-6), which affects about 1% of the population.

The CIHHV-6 Registry has been formed by an international group of research scientists and clinicians interested in studying ciHHV-6. Patients can fill out a survey about their medical history and ciHHV-6 status, and physicians can sign up to receive more information on testing and clinical trials.
 
Joining the contact registry will help researchers identify and recruit physicians and patients who are eligible for participation in future research studies. Information contained within this registry will be used for recruitment to research studies directed at improving our knowledge of ciHHV-6. The work of the researchers cannot occur without the partnership with patients.

CIHHV-6 PATIENT REGISTRY

If you or your family member has ciHHV-6, please take a moment to join our patient registry. Your protected information will help scientists better understand ciHHV-6, and we will keep you informed about the growing research on ciHHV-6. The contact registry is anonymous and free of charge.


CIHHV-6 PHYSICIAN REGISTRATION

If you are a physician interested in ciHHV-6, please sign up to receive more information on upcoming research and possibly get connected with patients interested in testing and treatments. The objective is to identify clinicians who are currently treating symptomatic ciHHV-6 patients so that we can make them aware of research opportunities and recent developments on research projects.

The registry will be overseen by an international committee of scientists and clinicians and is supported by the HHV-6 Foundation.

CIHHV-6 Registry Committee:
 
Dharam Ablashi, DVM, MS
Louis Flamand, Ph.D., MBA
Paolo Lusso, MD
Peter Medveczky, MD

Email jill_chase@hhv-6foundation.org with questions about ciHHV-6 and the Registry.